A 9 year old boy's battle to regain his vision in one eye
Saturday, October 20, 2012
Breakdown.... Sick and tired of it all!
This week we had so many meltdowns with Drake and freak outs that we took him to his Pediatrician to see what are options are. Being he has ADHD, and then PTSD, she suggested a medication for now and possibly a second in a few weeks- if he gets too sleepy. We've not seen too much of a change but I guess it's worth the try. His pediatrician is Dr. Melissa Kendall!! She's been taking care of my boys for quite some time! I definitely trust her! I found this picture below and I think it expresses the way I feel! I've been really sick again this week. Ahhhhhhhhhhhhh! Emotionally, I'm fried!
Sunday, October 14, 2012
KSL... Click link to KSL news! You can donate under Drake Sorensen at any Chase Bank or on the PayPal tab!!
Click link to KSL news! You can donate under Drake Sorensen at any Chase Bank or on the PayPal tab!! I would write more but I'm pretty under the weather!
http://soc.li/sKiM06k
http://soc.li/sKiM06k
Friday, October 5, 2012
Glasses
So this week the fear of glasses has started. Drakes eye continues to shut half way. It looks sorta like a lazy eye. He has a serious bifocal in the left lens
We paid extra to have the bifocal made as thin as possible without giving him a major bug eye. We took him to Alpine Vision and they were great!
Kids at school yesterday were calling Drake names because of his glasses. Sometimes I wish I could go smack those kids!
Drake continues with art therapy. I noticed this morning he left his snack and homework folder on the counter. The therapist explained that with PTSD it's normal to have everything a mess. It's a reflection of how Drake views himself. It's so sad and very overwhelming. He rips through his drawers like a hurricane to find things, he leaves his laces untied, his writing has gone bad and we just had parent teacher conference to learn that he's slipped back to a second grade level in writing and spelling. It's so upsetting. He may act like he is doing great but that's because I can tell he desperately wants to feel that way! He also asked for eye drops this week. That was also a first. He had been jumping on trampoline and came in crying that his eye was hurting and felt dry.
Sorry that my blogs have become boring. We are just trying to maintain a normal, positive, lifestyle. Next week we are off to the eye doc at Children's and art therapy in Orem. I will be out of town for work again. I hope he does ok. It's so hard to leave them all...
We also hiked Timp Cave last weekend! All the boys loved it!
We paid extra to have the bifocal made as thin as possible without giving him a major bug eye. We took him to Alpine Vision and they were great!
Kids at school yesterday were calling Drake names because of his glasses. Sometimes I wish I could go smack those kids!
Drake continues with art therapy. I noticed this morning he left his snack and homework folder on the counter. The therapist explained that with PTSD it's normal to have everything a mess. It's a reflection of how Drake views himself. It's so sad and very overwhelming. He rips through his drawers like a hurricane to find things, he leaves his laces untied, his writing has gone bad and we just had parent teacher conference to learn that he's slipped back to a second grade level in writing and spelling. It's so upsetting. He may act like he is doing great but that's because I can tell he desperately wants to feel that way! He also asked for eye drops this week. That was also a first. He had been jumping on trampoline and came in crying that his eye was hurting and felt dry.
Sorry that my blogs have become boring. We are just trying to maintain a normal, positive, lifestyle. Next week we are off to the eye doc at Children's and art therapy in Orem. I will be out of town for work again. I hope he does ok. It's so hard to leave them all...
We also hiked Timp Cave last weekend! All the boys loved it!
Tuesday, September 18, 2012
A never winning battle....and exhaustion
Life is hard. I'm not sure who the first person was to say that, but it's pretty true. Drake has been hard lately. We've started him in art therapy and the therapist told us that a child with PTSD mixed with ADD are the hardest to pull out of and the process will take about 2 years. This can explain why Drake comes home from school whenever he sees someone who resembles the person who pulled the trigger.
Nights are still very challenging. He becomes an emotional monster. I leave again for work next week and I'm sad about that. However, I'm grateful to have a good job and good health insurance. My employer and boss have been very patient with me as we travel this journey. From what I can see we have quite a long road ahead.
My Grandma Peggy passed away Wednesday. I hate death, in fact I fear it now more than ever. I fear having one of my children die before me. I'm really going to miss my grandma . She was such a great lady. I have fond memories of her spoiling me rotten and always being so sweet. She's with my Grandpa Bob now and I'm sure she's much happier.
Okay, back to Drake as this blog is for him. We've lost sone steam on bracelet making. It seemed like after his surgery and school starting its just so crazy! We are going to start making more again. It looks like we will have another surgery in a few months so it can keep us occupied until then.
My sister has been staying with us and helps out tremendously. Drake and Hollie have this strange bond. I blame it on their ADHD! He just loves to sleep by Aunt Hollie, play with her, etc. He even made a special bracelet just for her!
Anyway, we have our semi weekly visit to Children's Hospital today so I will go for now. It's off to work I go!
Nights are still very challenging. He becomes an emotional monster. I leave again for work next week and I'm sad about that. However, I'm grateful to have a good job and good health insurance. My employer and boss have been very patient with me as we travel this journey. From what I can see we have quite a long road ahead.
My Grandma Peggy passed away Wednesday. I hate death, in fact I fear it now more than ever. I fear having one of my children die before me. I'm really going to miss my grandma . She was such a great lady. I have fond memories of her spoiling me rotten and always being so sweet. She's with my Grandpa Bob now and I'm sure she's much happier.
Okay, back to Drake as this blog is for him. We've lost sone steam on bracelet making. It seemed like after his surgery and school starting its just so crazy! We are going to start making more again. It looks like we will have another surgery in a few months so it can keep us occupied until then.
My sister has been staying with us and helps out tremendously. Drake and Hollie have this strange bond. I blame it on their ADHD! He just loves to sleep by Aunt Hollie, play with her, etc. He even made a special bracelet just for her!
Anyway, we have our semi weekly visit to Children's Hospital today so I will go for now. It's off to work I go!
Thursday, September 6, 2012
Sleepless nights...
Argh! It's 5:03 a.m. and I'm tossing and turning in my hotel room. I'm away from all of my kiddos and I'm so stressed about Drake. He's so behind in school. He's only able to read, if he covers his left eye with his hand and at this point I wouldn't call it reading.
He came home from school this week sick from his eye and very upset. We've agreed to put him in therapy as he has pretty bad PTSD. He's either upset or upsetting someone else especially towards the evening. I've also noticed pretty intense panic attacks.
My sister who is closest to Drake is moving to Utah. I'm so happy. I feel like someone is holding a pillow over my face and I'm fighting for air. It will be great to have her comfort.
I would have never thought this situation would try all my patience, frustration, sadness, etc. I honestly can say I feel actual heartache for him. My husband has been working a lot, so it's been very lonely. The other two boys are doing great. I feel very fortunate that Drake is such a fighter and positive child. I often wonder if God gave him all the spirit and creativeness he has to help prepare us for situations like this. I've never seen a child so positive thru such hard times. He's still making everyone laugh.
The sweetest thing I've heard my youngest say while we were cuddling was when asked what his favorite thing was about each brother, he said, " I like Drake's owie eye." His innocence and lack of judgement because someone was different melted my heart. When times are tough, I try my best to hold onto the sweet moments like those.....
He came home from school this week sick from his eye and very upset. We've agreed to put him in therapy as he has pretty bad PTSD. He's either upset or upsetting someone else especially towards the evening. I've also noticed pretty intense panic attacks.
My sister who is closest to Drake is moving to Utah. I'm so happy. I feel like someone is holding a pillow over my face and I'm fighting for air. It will be great to have her comfort.
I would have never thought this situation would try all my patience, frustration, sadness, etc. I honestly can say I feel actual heartache for him. My husband has been working a lot, so it's been very lonely. The other two boys are doing great. I feel very fortunate that Drake is such a fighter and positive child. I often wonder if God gave him all the spirit and creativeness he has to help prepare us for situations like this. I've never seen a child so positive thru such hard times. He's still making everyone laugh.
The sweetest thing I've heard my youngest say while we were cuddling was when asked what his favorite thing was about each brother, he said, " I like Drake's owie eye." His innocence and lack of judgement because someone was different melted my heart. When times are tough, I try my best to hold onto the sweet moments like those.....
Friday, August 24, 2012
Quotes worth noting...and a picture worth showing!
"Make no judgement where you have no compassion" -Anne McCaffrey
"Never look down on anybody, unless you are helping them up"
-Jesse Jackson
"With humor, you can soften some of the worst blows that life delivers, and once you find laughter, no matter how painful your situation might be, you can survive it" -Bill Cosby
"Many of the great achievements of the world were accomplished by tired and discouraged men, who kept working"
-Hermione Granger
"We should live our lives as Christ was coming this afternoon" -Jimmy Carter
"What seems to us as bitter trials, are often blessings in disguise"
-Oscar Wilde
"Never look down on anybody, unless you are helping them up"
-Jesse Jackson
"With humor, you can soften some of the worst blows that life delivers, and once you find laughter, no matter how painful your situation might be, you can survive it" -Bill Cosby
"Many of the great achievements of the world were accomplished by tired and discouraged men, who kept working"
-Hermione Granger
"We should live our lives as Christ was coming this afternoon" -Jimmy Carter
"What seems to us as bitter trials, are often blessings in disguise"
-Oscar Wilde
Tuesday, August 21, 2012
Pictures of surgery and after
Here are pictures throughout the day of surgery and today! You will notice a "monster" Slim Jim. He wanted one. Very random. We also had my hope bracelet on and his father wore his because he couldn't have it on in surgery. 
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